http://www.firstgiving.com/edwardviljoen
Here's
what I'm doing to contribute something to the world! How the heck did I
get into this... I'll tell you how... I looked into a baby's eyes...
and it was alllll over. Dang, they are irrrrreeeesisitible. So, HELP
ME! how? I'll tell you how... donate please.
Everybody falls in love with Isabella Theresa! It's the eyes I think, or the hair, or... I don't know...It's just her....I fell for Bella at her baptism ceremony. So when her mom asked me to participate in this fundraiser for the rare genetic disorder Bella has, I knew I would.
At
first I couldn't even remember how to pronounce the name of the
disorder - and hardly anyone I know had heard of Cockayne
Syndrome (CS) a rare genetic disorder characterized by poor growth,
microcephaly, progeria (premature aging), sensitivity to sunlight,
moderate to profound developmental and neurological delays, and a
shortened lifespan. That's what makes it so tender - its easy to
minimize the need for support when the disorder is so rare and so few
people know about it. But it's impossible to minimize it when you know
someone who has it.
Because
it is so rare, funding for educational programs, exchange of
information and support for research is slim. So we raise funds!!
Visit my fundraising page for more information about the organization:
http://www.firstgiving.com/edwardviljoen
And please forward this to anyone who you think might want to donate too!Much love,
Edward Viljoen
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